OSTOMY ASSOCIATION MCOA OFFICERS
President: Johann Norris
Vice President: Kris
AN AFFILIATE OF UNITED OSTOMY ASSOCIATIONS OF AMERICA, INC.
Newsletter: Walter Cummins
Types of PeristomAL
(or skin surrounding Stoma) problems
Fund Raising: Tony Padula
Skin Irritation Due to leakage
Stoma discharge can be irritating to the skin, causing redness that can progress to open
raw skin that weeps or even bleeds. This type of irritation is often very painful. People with
ileostomies are at the highest risk. However, for anyone, a change in your stoma or the shape of
your abdomen can make your pouching system not fit as well as it used to, leading to leakage.
• Change your pouch promptly if drainage is leaking under the skin barrier.
• Change your pouch on a regular schedule before it leaks.
• Contact your WOC Nurse if you are having difficulty keeping your pouch on.
• Consider use of accessories (peristomal powder, paste, or convex barrier rings) to help
prevent leakage under the skin barrier.
Skin Irritation under Tape
Irritated skin that develops only under the tape of your ostomy pouching system can occur
for a variety of reasons. You may be sensitive to an ingredient in the tape or your skin may
have become damaged from tape removal. The skin may be itchy, blistered or open and
weeping. This problem can develop at any time even if you have worn the same type of
Dr. John Dalena
product for months or years.
• Try a pouching system without tape. These products are adhesive but use a skin barrier
Dr. Rolando Rolandelli
instead of tape.
• Apply ostomy powder to any open skin before applying your new pouching system.
• Contact your WOC Nurse if you are having difficulty keeping your pouch on.
Rash under an Ostomy Product
Sometimes a rash is caused by sensitivity, moisture, a skin infection, or even leakage. The
area may be red or red with bumps. Itching may also be a symptom. It is important to get
assistance in determining the cause since the suggestions for treatment will vary.
• Contact the WOC Nurse if you are having difficulty keeping your pouch on.
• If an antifungal is recommended for treatment, make sure it is in a powder form, not a
cream or ointment.Remember:
Don't ignore skin problems around your stoma.
Don't use home remedies.
Do seek help for skin irritation or pouch leakage.
Source: Hollister Incorporated
Having Problems with your Ostomy?
The following questions and replies were posted on the Ostomy Support Group on www.inspire.com.
Skin depression close to stoma
Does anyone have a depression around the stoma that is a major cause of leaks? Mine is on the left side, is over an inch long and about an
eighth of an inch deep and a quarter of an inch wide. This is a major cause of leaks and I've tried paste stick with soft stomahesive paste
over it. Has anyone heard of a procedure that can permanently fill in the depression? Maybe a syringe full of stuff like they use for fuller
Yes, when I first came home last year that depression from a surgical scar made for the stoma was the arroyo as we call it where I live.
If anything was going to leak that was the path it would take. The fix was over long trial and error was to use a saline syringe with
stomapaste to fill the depression in let it set, then an Eakin ring and a convex wafer from ConvaTec. Once the combination was found I
stopped having this problem and felt a bit secure for the first time since the operation.
First of all, if you have a WOC Nurse/clinic available to you, go there to get their expert advice. Without actually seeing the depression,
it's hard to know what to advise. That said, I have a depression to the lower left side of my stoma, plus the problem of a flat stoma
that was leaking before I saw my WOC Nurse. She "fixed" the problem by putting me into a convex wafer for the flat stoma. For the
depression, I use an Adapt ring (#7805) around the stoma, and then another half ring on the lower left side of the stoma. That, and the
addition of using a stoma support belt, and the leakage problem was solved. I have real difficulty working with stoma paste myself, so
was really glad that that wasn't part of the fix. These specially trained nurses are wizards at coming up with solutions to the weirdest
problems; they've seen it all.
Opinions on Ostomy Belts
In the beginning, I did not have an ostomy belt, wasn't told about them in the hospital.so suffered thru leaks and actually had the
whole appliance fall off in my kitchen, and then again a couple weeks later in my surgeon's office. Ever since that day, I have worn an
ostomy belt. I like to do things like kayak fishing out on the Chesapeake Bay, hunting out in the woods, working out in the yard.I want
all the support I can get.and since that (lucky) day seeing my surgeon.I have never had another leak, no major or minor problems.I
get a new one with my supplies each month. I wash the ones I have in the washer (no bleach). They are good for about six months. I
don't care what the darn thing looks like, since I always wear a shirt. My ileostomy is almost belly button high. Then again, everyone's
experience is slightly different. I recommend trying it and see if it works for you.
Ostomate of the Month
Hindsight is a wonderful thing, and in March 2008, if I had
The May 2013 newsletter explained the J-pounch as an interal
known what I know now, I would have said to the Doctors and
alternative to a stoma and pouch for colorectal diseases. The
Nurses, "Just remove my colon and give me a bag."
neobladder, also formed of a portion of the individual's own small
intestine, serves as an equivalent intenal substitute for people who
require removal of the bladder.
How Neobladders Work
The neobladder is made from a piece of a person's own small
intestine that is formed into a pouch and positioned inside the
body in the same position as the original bladder. With this
procedure, most patients can urinate in a normal fashion. There
is usually a period of urinary leakage until the pouch stretches up
and the patient strengthens the sphincter muscle that holds in the
urine. Occasionally patients need to put in a catheter to drain the
urine; this is more common in women than in men. Some patients
also have persistent leakage, especially at night.
I must say it took hundreds of prednisolone, azathioprine,
Not everyone is a candidate for a neobladder reconstruction; for
mercaptorpurine and asacol tablets and pints of blood, saline,
example, patients must have full kidney and liver function, and
hydrocortisone and cyclosporin to take the decision out of my
cannot have cancer in urethra. However, many patients prefer this
hands and give me my bag for life!! And a bag for life it is!!
type of diversion compared to an ileal conduit (external collecting
bag that sticks to the abdominal wall).
Since my sub-total colectomy in November 2009, I have
managed to finish my university degree and gain a 2:1 in
BA(Hons) Secondary Education, get myself a full time, very
demanding job with my local council Social Services department,
appear on a ITV game show and win £25,000 [$40,000] and
meet the most perfect man in the world!!
I was given the choice of a bag or a box, and I know I made the
right decision! Life really has been good since my operation [.]
Adapting to a Neobladder
Things I would never have dreamt of doing before my ileostomy,
and things that would have been impossible if I wasn't here at all!
As with any bladder substitute, it may take some time until the
neobladder functions best. Soon after surgery, many people may
The operations are not over yet! I'm due my proctectomy
have difficulties with urinary incontinence until the neobladder
any week now, just to remove the last part of my rectum and
stretches to a normal bladder size.
give me a "Barbie bum". I chose the proctectomy over the
pouch construction. The main reason being, I have no problem
The new bladder continues to enlarge and function better even
aesthetically with my bag on my belly, so I don't see what I would
over the first one, two, and three year. However, initially patients
be gaining by having the pouch!
have more incontinence during the night and most of them will
wear an incontinence pad. Leakage of urine during the day is
I do feel that everything I've been through has made me a much
unlikely and usually improves quickly.
stronger, mature person. However, my ileostomy is only a
Also, the "new bladder" doesn't contract (squeeze out the urine)
small part of who I am, and it definitely doesn't define me! I've
like a normal bladder does. To urinate, patients need to relax the
learnt that when you accept your bag, others will also accept
sphincter muscles and push with the abdominal muscles, the same
it! As proud as I am to have my bag, I have the same goals and
as if they were having a bowel movement.
aspirations as other people. To live my life as much as I can and
enjoy every minute of it! Even those minutes when I'm hovering
If you have bladder diversion surgery, your physician and health
over the toilet, emptying the contents of my bag. At least I'm
care provider will provide you with education and instruction.
doing it with my heart still beating and a smile on my face!!
Sources: Stanford Cancer Institute, Mayo Clinic,
University of Michigan
Source: www.stomawise.uk, March 2013
Morris County Ostomy Association MEETING SCHEDULE
September 18, 2013
The Morris County Ostomy Association is a community based, local organization
L. Becker, Founder
made up of volunteers whose purpose it is to reach out to ostomates and their
families, providing them with a network from which they can share experiences,
swimwear and clothing for
obtain information, and gain emotional support.
October 16, 2013
The association's voluntary visitation program offers support on a one-to-one basis
L. Hollander, Nutritionist,
Nestle Health Source
to patients and their families. The ostomy volunteer visitor is carefully chosen and
November 20, 2013
trained. The visitor is well adjusted to his/her ostomy and is able to offer additional
T. Metz, Coloplast
support and information on ostomy care and management at home.
December 18, 2013
The Morris County Ostomy Association holds regular monthly meetings. The
meetings normally consist of an informal gathering of ostomates and individuals who January 15, 2014
may be contemplating ostomy related procedures. Families and friends as well as
C. M. Trezza, owner,
Lake Surgical Supply Denville, NJ
significant others are always welcome.
February 19, 2014
The evening usually involves an informal talk by a physician, a nurse specialist, a
distributor of ostomy supplies, or social worker. Presentations are always on a topic of T. Rooney, Hollister
interest to the entire group. Most importantly, the meeting offers the opportunity for representative
individuals to share information and discuss mutual interest and concerns.
Morristown Medical Center
Atlantic Health Group
100 Madison Avenue
Morristown, NJ 07962
If you do not wish to receive future MCOA newsletters, call George Salamy at 908-879-1229.
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